Simsbury, CT (January 14, 2013)— The Cornelia de Lange Syndrome (CdLS) Foundation is pleased to announce Kelly Madin as its new family service coordinator. Madin will provide numerous support services for families across the country for the national nonprofit, located in Avon, CT.
Madin, of Simsbury, joined the CdLS Foundation in December 2012.
“We are so glad to have Kelly join our family service team,” said Marie Concklin-Malloy, executive director of the CdLS Foundation. “She brings great experience to the table and has seamlessly become a part of the Foundation staff.”
“I really enjoy working here and getting to know the families and children with CdLS. I am very excited to attend my first family gathering and get to meet some of the families in person,” said Madin. “I love talking with families on the phone and being able to offer support and information. It’s especially gratifying to be able to connect families with each other.”
Originally from Pottsville, PA, Madin is a graduate of Susquehanna University in Pennsylvania, and went to graduate school for family studies at the University of Connecticut. Prior to joining the CdLS Foundation, Madin worked with emotionally challenged adolescents at The Wellspring Foundation in Bethlehem, CT, and as a family therapist for Christian Counseling Connection in Torrington, CT.
For more information about the CdLS Foundation or to make a donation, call the CdLS Foundation at 800-753-2357 or visit www.cdlsusa.org.
Cornelia de Lange Syndrome occurs in about 1 in 10,000 births. An estimated 20,000 people in the U.S. have CdLS but remain undiagnosed and/or without support services. Individuals with CdLS range from mildly to severely affected, though most have similar physical characteristics including small size, hands and feet; thin eyebrows that meet in the middle; long eyelashes; an upturned nose; and thin, downturned lips. Some individuals have limb differences, including missing fingers or arms. Common medical problems include GERD, bowel obstruction, hearing loss, and congenital heart defects. Early diagnosis and intervention is essential to ensure proper management of related medical issues.
About the Foundation
Founded in 1981, the Cornelia de Lange Syndrome Foundation is a national family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS and their families make informed decisions throughout their lifetime.